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Billy bones had another appointment with the neurologist.
By the way, if you follow me on twitter you’d already know a bunch of this, just sayin’.
Anyway, the visit with the neurologist was somewhat of a disappointment. The tics haven’t diminished, in fact, they’re as bad as ever. And this may or may not change.
She offered medication if we feel like he needs it, which, I love not being commanded what to do by doctors or, well, anyone, but some guidance would be helpful. Oh, and the meds? They may or may not work. And the side effects? Some never go away, even when you discontinue the medication. How is that a good trade?
She did give me some literature and a couple of web sites to look at, but beyond that the whole visit seems like a large waste of time. Glad we don’t have a co-pay.
So, here we go, learning to just live with it, work around it, and generally just ignore it as much as is practical.
No related posts.
Well, even if the docs can’t do much we have a great and glorious God who can. We will just lift him up in prayer. “In everything, through prayer and supplication, let your requests be known to God.”
I have a friend who has a daughter with this. If you would like, I can ask her what she is doing and has tried. I tell you though, she does things more the natural ways. Tries to avoid meds. as much as possible( we both are like this). Let me know if you are interested.
It’s Chronic Motor Tic Disorder, which is very much like Tourette’s. It’s not Tourette’s though, since he has no vocal aspect. However, it could be that the vocal aspect has just not presented yet. If that should happen then the diagnosis would be updated.
I’m not familiar with his story, are you talking about Tourette’s?